Emily Rapp is the author of Poster Child, her 2007 memoir about her life with disability. Emily was born with a congenital defect that required that her left foot be amputated at the age of 4.
In January 2011, Emily and her husband, Rick Louis, learned that their 9 month old son, Ronan, has Tay-Sachs disease. Tay-Sachs is a rare, incurable, genetic, progressive disease that will claim Ronan’s life in the next few years. Shortly thereafter, Emily began Little Seal, her blog to chronicle her family’s time with Ronan and their struggle with the disease.
Emily, Rick and Ronan currently reside in Santa Fe, New Mexico.