An essay by my friend Jennifer, who is my good friend and just blew up my Facebook page.
Today we took a road trip.
Me, Emily and Ronan. Ronan, packed in the back, his small floppy head propped up with stuffed animals and socks, his face reflected in a crooked little mirror, so Emily, his mom, could look into it every so often as she drove in case he had a seizure or stopped breathing.
Tay Sachs has its hold on this little boy. This perfect little boy making cooing noises in the back seat as we marvel at trees and patterns of light and talk about what it means to be happy and how even when you are happy you are still a little bit sad.
Or at least I am.
Our first stop after we left Santa Fe: The Chimayo Sanctuario. It was hot when we stepped out of the car, hotter than it has been back in Santa Fe. Gusts of warm wind blowing my…
View original post 1,449 more words