On Being Blog

An article today about Ronan on NPR’s On Being blog. Photos by Jennifer Weber!

http://blog.onbeing.org/post/13343947636/into-the-wilderness-parenting-a-terminally-ill-child

2 responses to “On Being Blog

  1. I commented over there.. Meant to come back over here..

    I know that there isn’t any true comparison, but I am going through sometime a tiny bit similar.
    My daughter’s grandmother has Parkinson Disease, and I am so scared to have to watch it.. In the past few weeks her symptoms are showing more than normal, and it makes me cry. I know watching her and loosing her will be the hardest thing I have to go through in my life. So I feel and share a little of your pain.. I know you have a ton of friends, but you do have a friend in me. I know “I’m sorry” doesn’t go very far, but I am. I am sorry that you don’t get to spend the time you deserve with your son. I’m sorry for yours and his pain. I wish we weren’t helpless. Thank you for writing so beautifully, and posting the cutest pictures I’ve seen! I just imagine the softness of that belly skin.

    <3xojo

  2. As always, reading your work makes me strive to be in the moment and parent with love, simply for the humanity of it, as you wrote in your NY Times article. Much love to you, Ronan, and Rick.

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